Kathryn has ASL. She is paralyzed and opted for mechanical breathing but her mind is intact. Her husband Said has worked hard to provide her with all kinds of assistance, but he is very distressed by this situation. Her grown son Noah, who lives with his parents, struggles to reconcile his academic obligations with those he feels to his mother. The disease has also been a destructive force complicating relationships in the family. Kathryn often falls into despair, but she has been holding on to see her daughter’s wedding day. This project draws on 930 hours of footage—all filmed from a fixed camera from Kathryn’s point of view. The result is a profoundly intimate, layered and wryly funny portrait of a family at its breaking point.
The film will be available online on MYMOVIES on Tuesday 14 June at 5pm